Year: 2018
Country: Scotland
Language: English
Name of resource: Talking with young people about Huntington’s Disease. A toolbox guide for parents.
Author details: The Scottish Huntington’s Association (2018)
Format: A toolkit to support parents in discussing Huntington’s Disease with their children.
Target group: Parents
Purpose of the resource: To support parents in discussing HD with children and young people, including practice question and answers, and relaxation tips.
Copyright: Copyright protected
Download the resource: https://hdscotland.org/wp-content/uploads/2018/09/Talking-with-YP-about-HD-Parent-Disclosure.pdf
Why was the resource developed: Provides guidance, checklists, examples and infographics that parents can use when explaining a serious illness to their children.